Friday, December 28, 2012

No Peanuts at the Cirque du Slape! Our Nut Allergy Story


Like a circus elephant, who DOESN'T love PEANUTS?...or peanut butter? Reese's? or Pay Days? 
What about TREE NUTS - such as pecans, walnuts, cashews & pistachios? 
Well, people who are allergic, that's who, -and we have TWO of them living under our BIG TOP.  
I know. It stinks. 

I feel compelled to share our story because there are so many children out there who struggle daily with food allergies.  Maybe, just maybe, a parent out there will read this and know they are not alone. 
I also hope to share with you some tips and links that I've discovered over the years that have made our struggle with FOOD ALLERGIES a little more bearable.

December 2000
It has been 12 years since the dreadful day....
If not for a friend mentioning that such a thing as a PEANUT ALLERGY existed just weeks beforehand, we may not have known to take IMMEDIATE action to treat our 1st born when she had her 1st encounter with peanut butter.

Peanut butter on an English muffin.  Yummy & harmless, right?  Not the case!  After just one bite, an innocent 13 month old knew that something was NOT right.  A tingling tongue?  An itchy throat?  Who knows, since she didn't have the vocabulary to explain.  All we knew is that she did not want to take another bite.  Then......




These photos were taken at the onset of the hives.  The reaction got much, MUCH worse, but I was not thinking about taking photos at that point. I just wanted to get help for my baby girl!


After dialing the on-call doctor (because it was a holiday weekend), we were told to give our baby a dose of Benadryl when the first hives appeared.  We were new parents, so we didn't have Children's Benadryl on hand.  My husband headed to the closest store, which at that time was miles away.  By the time he returned, the hives were beginning to show up on our baby's stomach & she was extremely uncomfortable - itching & swelling by the moment.  After seeing no improvement once the Benadryl was administered, we decided to drive our baby across town to the ER.

Good thing! When we arrived at the emergency room her little body was covered in hives and her face was swollen beyond recognition. Even though the ER was full of patients that day, our baby was admitted immediately!!!  She was treated with Epinephrine, which saved her life, 
and then, our lives totally changed.....forever.
On that day, the doctor told us that we would need to always carry an EpiPen and that our daughter should STAY AWAY from peanuts and "tree nuts"until we could have her tested for specific food allergies.  (Peanuts are legumes that grow on bushes, other nuts grow on trees.  They are different, but some kids are allergic to both.)   He said that if she was exposed to peanuts a 2nd time, the reaction would most likely be stronger and progress more quickly. (sigh)

Years later, at age 4, our daughter saw an allergist and was poked, prodded and tested to see if she was still allergic to peanuts and tree nuts.  We hoped that she had outgrown the allergy (like some children do), but we were startled to find that on a scale of 0-100 (low to very high), the severity of our little girl's peanut allergy was 100+, off the charts (double sigh)!  The good news was that she did not have an allergy to "tree nuts", so pecans, walnuts and cashews were still on the menu and ok to have around....for now.

Fast forward a few years.....
By accident, we discovered that our 2nd child (thankfully) has NO food allergies (when a friend's son unknowingly shared a peanut butter cracker with our son).  What a relief!  I always say that if our son had food allergies, we would be in the ER at least once a week! He wasn't always the "rule follower" of the family, and so monitoring everything he ate in the preschool years was (thank goodness) not necessary. Whew!

Fast forward to 2006...
 On an unrelated doctor visit, our pediatric nurse practician noticed a rash on our 3rd child's newborn cheeks.  The nurse said that our baby girl may have food allergies, and I (the mom) was instructed to eliminate all dairy from my diet (since I was breastfeeding).  *Are you kidding? No milk, yogurt, cheese or ice cream?  HOW COULD THIS BE???*  Like any loving mother, I made the sacrifice for my baby, and it worked! In just a couple of days, my sweet baby's rash was all cleared up. She officially had a DAIRY ALLERGY. It wasn't until I drank a milkshake (oops - I blame the ditziness on my lack of sleep), then nursed my baby, that I realized how quickly the dairy passed from me, through the breast milk,  to the baby and caused a full-body rash. 



Then...
After her 1st birthday, I let our dairy-allergic 3rd child taste some pecans that were fresh from my grandpa's pecan trees. There was no immediate allergic reaction, so I thought we were in the clear.  However, in the middle of the night our little girl began crying and was particularly annoyed. Thinking she may be hot, I changed her out of her footed-fleece PJs into something cooler (In the least amount of light possible, so she wouldn't think it was morning.)  She seemed more comfortable, so back to bed she went.  When morning came, I went in to love on my baby and change her diaper in her sun-lit room.  In an instant I realized why she had been so upset during the night. She was covered in a red, bumpy rash on her whole body.  It must have been the PECANS! The allergy doctor soon confirmed my suspicions and concluded that our baby #3 was not only allergic to milk, but also to TREE NUTS (pecans, cashews, hazelnuts, pistachios, Brazil nuts, walnuts, etc.) 

Just like with any food allergy, any future exposure to the allergen can be much quicker and more intense. So, we have another child who requires an EpiPen. Ironically, she is NOT allergic to peanuts.  THANK GOODNESS because when she found a lone Reese's Pieces candy in the candy machine dispenser at Chuy's and popped that thing right into her mouth, I prayed that we would not need an ambulance to take us to the ER.  Whew!

*Baby #4 - No known allergies (has already been exposed to dairy, peanuts, almonds).  Yea!

Coping with PEANUT/TREE NUT ALLERGIES:

Food allergies are serious! 
There are no ALLERGY CURES, although research is being done to find a solution to this terrible problem. Oral desensitization and the development allergen-free peanut are two areas of research that give us hope for a cure.  

is a GREAT resource for education on this topic! I have learned a lot about how to read food labels & how to make our children's teachers & friends aware of how to protect the allergic when my husband and I aren't there.  

There are lists of NUT-FREE SNACKS online 
that I share with parents who are providing food for school parties and can't seem to find 
ANYTHING that doesn't have an allergy warning label on the box. 

Finally,



Please share this link if you know someone who needs support or education on food/nut allergies.
Also, join us in praying for a cure.



Saturday, December 22, 2012

Hot Cocoa at Christmastime


Recently, a very sweet friend gave our family a jar of homemade hot chocolate mix with marshmallow stirring sticks (dipped in chocolate and crushed peppermint)!!!  The rich, warm, chocolatey concoction was a perfect after-school treat as we approached the Christmas break.  

As you can see, my "littles" were delighted!


This hot cocoa brings back a recent episode in our family circus that is worth retelling (it's much funnier now than at the time : ) ....

I usually have my two little girls with me when one of the older kids has an orthodontist appt. The super-cool office has a fancy Kuerig coffee maker, and my little ones just loves to make cups & cups of hot cocoa while we wait.

THREE TIMES "we" have spilled whole cups of cocoa on the office carpet (which, thankfully, is espresso colored)!  TWICE, the actual orthodontist helped us clean up the mess...embarrassing! The last time (and probably our last time to get cocoa there), my 2 year old's almost-full cup of cocoa spilled on the tile floor by the super-snazzy, electronic dental chair (as my 12 year old was being examined), and the entire tasty beverage poured right down the electrical floor outlet! UH-OH! The examination light immediately shut off (due to the CGFI being tripped) AND the computer system went haywire!  BEEP!  BEEP!  BEEP!   BEEP!  There was an incessant beeping throughout the office (when the computer went down) that drove us (the hygienist, the orthodontist, and ESPECIALLY THIS MOMMY) all completely crazy until the orthodontist had to go back and flip the braker.  Fortunately, we were able to sop up most of the cocoa (while Abigail remained in the reclined, mouth-propped-open position).  Eventually, the power was restored to the examination area, and my blood pressure decreased.  Whew!  This is where I do a plug for DR. PAUL GATES, because he truly is a GREAT orthodontist, and an extremely PATIENT and FORGIVING man!

*** On a scale from 1-10 on the EMBARRASSMENT SCALE, this event rates 8.5 ***

Thursday, July 5, 2012

I love a Parade! God Bless America!!!




If a picture is worth a thousand words,  I could easily compose a thousand words about this photo and my love for this country!  I get all choked up & teary-eyed as I admire the service men & women marching in my hometown 4th of July parade.  They give-up so much for our freedom, and I am in awe of their sacrifices.




Every 4th of July, I wake up all giddy about going to the parade downtown.  There's just something special about everyone donning their RED, WHITE & BLUE and showing respect for our great country.  At my kids' request, I got out my paints  & quickly applied stars & flags to their precious little cheeks before the parade.  I also painted "USA" on Ella's cheek, which she referred to as "BSA" all day.  That was pretty cute, considering she's all of 2 1/2 years old.





Since I was not blogging in January (remember, I lost my blog & could not remember how to access it *wow*), I did not get to recognize my BRAVE little brother who volunteered to to serve in Afghanistan last year.  I want to take a moment to honor him.

Jay, an Air Force fighter pilot, risked his own life to serve our country. I admire him so much!  We had the opportunity to Skype with him while he was stationed overseas, but seeing his face on our computer could not compare to seeing him in PERSON when he flew back into the good ole USA!  


Our family greeted him at the airport & then celebrated his homecoming back at our house.  I made that amazingly "magic" FLAG CAKE that I found on the internet.  What a fun project that was! Thank goodness I remembered to take a picture of the inside of the cake before it was gobbled up!!!



If you haven't made this cake before, I challenge you to try it.  It is neat to see how the rings and layers of the cake come together to make a flag when sliced.  The best part *I think* is keeping the inside of the cake a SURPRISE until it is cut for the guests! 

In case you are wondering, this is what the FLAG CAKE looks like in the assembly phase.  My kids kept asking, "How is THAT going to be a flag?"  It's either magic...or science...or art.  You decide.




I didn't bake my favorite FLAG CAKE this 4th of July, but I did make some red, white & blue Rice Krispies treats.  They were yummy and MUCH quicker to throw together!  Instead of 6 cups of Rice Krispies, I used 4 cups, and then I added 1 cup of red and 1 cup of blue cereal (which I hand-picked out of a box of Hill Country Fare Berry Crunch cereal). Since we were out by the pool, this seemed like a treat that was easier to access by hungry little patriots in the Land of the Free & the Home of the Brave!

Monday, July 2, 2012

FAMILY RULES



Let's face it, a household, like a circus, can be LOTS of fun. But without rules or guidelines, it can be unruly & dangerous.  This is why I created a FAMILY RULES canvas for our home.  I got the idea from the Keepers Ministry website. There are instructions on how to make your own FAMILY RULES canvas, which are very easy to follow.

The gist is that you tear pretty pieces of scrapbook paper into strips and glue them onto a canvas in rows.  You use Mod Podge to seal the paper, and once it's all dry (over night), personalize the canvas with your own set of family rules/guidelines with a paint pen (or vinyl letters, if you'd rather).  Most importantly, use colors & wording that expresses YOUR FAMILY.  Maybe you use funny sayings, or perhaps you only have 2 or 3 rules.  Anything goes.

The goal of our family is to put God first in our lives and in our home. This sounds a bit broad , so I have chosen the fruits of the Spirit (Galatians 5:22, 23b) as our "rules".

Love God above all else
Be joyful - laugh & play everyday
Be a peacemaker - forgive others
Have patience with one another
Be kind to everyone - be an encourager
Do good - Let your light shine!
Be faithful - loyal, trustworthy & reliable
Use gentle words & ways
Be self-controlled - quick to listen, slow to speak, slow to become angry
AND....Be thankful - no complaining

Our 24x30 canvas is hung by our family computer work station in our kitchen, right by the breakfast table. You can't miss it!


 OK, now, let's get real.  
Posting Family Rules does NOT insure that they are followed.  What I love about this, though, is it is a great tool for redirecting off-track behavior for EVERYONE in our home.
Did I have patience with my kids today? 
Am I thankful for what I have?  Did I complain about another mess or load of laundry?
**Ok - so maybe the rules are more for me than anyone else.**

If you are not so confident in your crafting skills, I would be happy to make one for you! You can choose 10-12 pieces of your own scrapbook paper that you love, and I will use those.

24x30     $40.00
16x20     $35.00
11x14     $30.00
8x10       $25.00


Here are my LITTLES posing with our Family Rules canvas.  Aren't they getting along nicely? HA! They were just arguing over who was going to stand on which step, so I *patiently* redirected them towards more kind behavior. After all, you can't fight while showing off the Family Rules!!!!!! : )

Sunday, July 1, 2012

Back on track!

Hahahaha! Here's how I know that I am not such a great blogger (YET)... 
Um, well, I forgot how to access my blog! I couldn't even find it out there on the world-wide web, for goodness sake! Of, course, our little 3-ring circus has been on the move like crazy for the last year, so I *could* say that I haven't had time to blog at all. The fact of the matter, though, is that I go on tangents of things I love, or things that take hold of my interest and run with it. 

I guess my mind ran off to join the circus!

 Lucky me! I just happen to subscribe to a lovely friend-of-a-friend's beautiful, wonderful glittered nest blog, and THAT is exactly what keeps bringing me back to my fascination with blogging. So, when I got yet another email from glittered nest, I found the determination to search for, and ultimately find(!), my blog. Yay!  So here I go... And thanks, Terri, for your blogging inspiration!

It's SUMMER!!! With all four energetic, artsy children at home under the BIG TOP, I am both overwhelmed and excited about the possibilities of creating some memories, music, art & movies together.  In case you don't know, this blog's theme is circus related because all 3 rings (or sometimes more) seem to be performing at once, and, well, sometimes it's a spectacle.  


In the Center Ring, 
we have the high school sweethearts, married now for 17 years,
trying to sneak in a little bit of time for themselves.
Not.....happening.   
**But we are still smiling after all these years (and all these kids)!**


In another ring, we have THE LITTLES (ages 2 & 6) 

with their whirling, twirling, squealing and mess-making.
Here, they are posing quite happily (after a squabble over who was going to stand where)
to show off our FAMILY RULES CANVAS (more about that later).

In this photo they are covering their ears with high-tech ear muffs
because in another ring we have ...

THE BIGS (ages 12 & 10)
who are making VERY LOUD music (guitar, keyboard, singing & some drumming). 
They are quite talented and make me very proud!
Here we are experimenting with their 1st music video in front of a green screen.

They had their duet debut at the American Academy of Music and Dance
ROCK RECITAL this month.
They did a fantastic job performing in front of a live crowd at Juniors, 
but THE LITTLES were in NO WAY going to allow
THE BIGS to get all the attention!... Check this out:



Ok, I am bookmarking my blog, and I think I will be able to find my way back to this blog spot to share the MANY adventures of the CIRQUE DU SLAPE.  Hold on to your popcorn!

IT'S THE GREATEST SHOW ON EARTH!!!!